Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure

Tahar, Kais; Verbuecheln, Raphael; Martin, Tamara; Graessner, Holm; Biergans, Stephanie; Krefting, Dagmar

dc.contributor.author	Martin, Tamara
dc.contributor.author	Graessner, Holm
dc.contributor.author	Biergans, Stephanie
dc.contributor.author	Verbücheln, Raphael
dc.date.accessioned	2026-09-28T07:05:09Z
dc.date.available	2026-09-28T07:05:09Z
dc.date.issued	2026
dc.identifier.issn	1472-6947
dc.identifier.uri	http://hdl.handle.net/10900/183806
dc.language.iso	en	de_DE
dc.publisher	London : Bmc	de_DE
dc.relation.uri	http://dx.doi.org/10.1186/s12911-025-03153-x	de_DE
dc.subject.ddc	004	de_DE
dc.subject.ddc	610	de_DE
dc.title	Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure	de_DE
dc.type	Article	de_DE
utue.quellen.id	20260422000000_00543
utue.personen.roh	Tahar, Kais
utue.personen.roh	Verbuecheln, Raphael
utue.personen.roh	Martin, Tamara
utue.personen.roh	Graessner, Holm
utue.personen.roh	Biergans, Stephanie
utue.personen.roh	Krefting, Dagmar
dcterms.isPartOf.ZSTitelID	Bmc Medical Informatics and Decision Making	de_DE
dcterms.isPartOf.ZS-Issue	Article 60	de_DE
dcterms.isPartOf.ZS-Volume	26 (1)	de_DE
utue.fakultaet	04 Medizinische Fakultät	de_DE